Here we go again. (Nobody panic!)

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As I’m writing this post, I am doing something I never thought I would be doing. But March is National Developmental Disabilities Awareness month, so I’m writing a post about my child’s developmental delays. That exact thing I’ve done plenty of times before – if you’re a regular reader, you’ve read at least a dozen posts about Sophie’s significant developmental delays and how she overcame them.

But today I’m writing about Jonah. I never thought I’d be writing about Jonah.

Because, you see, when I was first dealing with the depth and devastation of Sophie’s delays, I was pregnant with Jonah. And at that time I had several conversations with both God and my unborn baby about how this child was going to need to develop perfectly typically and hit all those milestones right on time because I knew with certainty that I could not go through this again.

Well. Guess what?

Jonah is behind on speech. I noticed over a year ago he wasn’t talking nearly as much as the other two did when they were his age, and I immediately began worrying about. At his 18-month checkup he was only saying eight words total.  Cue mommy freak-out! I tried to tell myself that every kid is different, blah, blah, blah, but I still worried. I tried all kinds of things to get him to talk and build his vocabulary – all the tricks I had up my sleeve from my previous experiences. And it worked – kind of.

He now has a great vocabulary – over 75 words – but he doesn’t use any of those words together. He won’t put two words together and he doesn’t use “yes” or “no” very often – he prefers to fuss or giggle with glee instead of answering with words. Stuff like that. So, knowing that early intervention (we were pretty late with Sophie) is important and that it’s free before they are three years old through Help Me Grow (county program), I made the call to get him evaluated shortly after his two-year well visit in January (his birthday is December 17th).

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I didn’t want to. To be perfectly honest, most of me is still just unhappy to be going through this again. And yet, I know it’s no reason to panic. And a fabulously articulated blog post here by Ellen Seidman, a special needs mom and author of Love That Max (and so much more) reminded me the other day that I do NOT need to be freaking out about this. A lot of kids have developmental delays. Sophie’s were pretty significant and yet she conquered hers in half the expected time. There is no need to despair…I just wish I could sail through this one, I guess.

So after a couple months time, an evaluation, paperwork and home visits and all that jazz – Jonah has indeed been qualified for services with a speech delay. His delay is not huge, and it’s nothing  like the scope of Sophie’s delays. One of the developmental specialists who evaluated him said, “He’s just on the very edge of where he needs to be.” So, I am feeling encouraged. Tuesday he and I will start a once-a-week class with a handful of other parents and kids. I am really excited about it and am hopeful that by the time he turns three and the program ends, he will be all caught up and not have to go on to special preschool and private therapy like Sophie did.  Although if he does, I know that also will be okay. We’ve done before, and will do again, whatever our child needs.

When the significance of Sophie’s delays were first spelled out to me in black and white, I was very fearful. But many of my fears were not about her, but about me. What could I do to help her? I knew nothing about this stuff! I was ill-equipped and ignorant. I was scared, and I was weak.

Several times this week the Bible verse 2 Corinthians 12:9  has been brought to my attention – everywhere I’ve looked it’s been there – in books, on Pinterest graphics and in Facebook statuses. This has always been one of my favorite verses – it’s a nice one, because God says, “My grace is sufficient for you, for my power is made perfect in weakness.” I mean, what’s not to like about that? But even though I’ve long had that one memorized, I don’t think I ever realized how I’ve seen it applied in my life until I was contemplating writing this post. I realized that, like I stated above, I had very little to offer my daughter when it was time to help  her with  her delays. I was as weak as I could possibly be in that area. And yet, I did help her. I helped her a ton. Several months after Sophie graduated from speech therapy, I saw her speech language pathologist one day and she told me she had never in her career seen a parent so focused on helping their child.

You guys, that was not me. That was the perfect example of God keeping his Word. Where I was weak, He was strong. He gave me everything I needed to help Sophie, and he gave me the strength to do it.

And so there really is no need to panic about  my Jonah. There is only the need to be obedient and willing to do what he needs me to do.

Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. (That’s the rest of the verse. I didn’t make it up but I do mean it!)

I’ll keep you posted on Jonah’s and my progress. I think we’re both going to learn a lot!

 

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Wrecked by Grace

Sophie, my greatest teacher.

Recently a mom I know who has a child with developmental delays messaged me on Facebook and asked me to call her. She wanted some ideas and tips on working with her child at home, and she knew I had worked with Sophie to help her overcome her delays. Our talk was good and affirming for both of us, and after we talked we traded emails and I sent helpful product links and app links and encouragement.

And it tore. Me. Apart.

In a good way.

God’s grace in it all just broke me open. It is beyond humbling to me that I am able to use the experiences I had with Sophie to help and encourage another mom.  I can’t tell you what a privilege it is. Does that sound crazy? I am so honored to help. It boggles my mind that anything that I know can be useful to someone else. This isn’t because I have a terribly low opinion of myself (we all know self-esteem is not a problem for ol’ JRap), it’s because when Sophie was going through all her evaluations and we were realizing how very significant her delays were, and I was giantly pregnant with Jonah, I cannot tell you how many times I said, and cried out:

“God, I don’t know how to help her. I don’t know what I’m doing. I’m not the mother that Sophie needs. I can’t give her what she needs.”

“How can I do this? How am I going to help Sophie when I’ve got another baby to care for? What if I can’t teach her? I don’t know how!”

I was so scared of failing my child. What did I know of developmental delays, of speech or occupational therapy? Nothing, is the answer. I knew nothing.

And yet, here we are. I didn’t know, but I learned. God gave me what I needed and he gave us wonderful therapists and teachers to point me in the right direction. And two years later, to the day…

TO THE DAY, I just realized as I am writing this. Sophie’s preschool teacher pulled me aside with her concerns two years ago today.

I have to let that sink in for a second. To the day!  And I just realized it! Thank you, Lord. I don’t believe this was a coincidence.

Two years has passed and my darling girl is kicking butt in kindergarten and in life in general. And I am helping other people with what I learned helping her. It just blows my mind that I could be used. When I knew nothing, nothing. Not. A. Thing. I was lost and scared and ignorant. And yet.

Here we are.

God is good. He keeps giving me more gifts of grace.

Three nights ago another mom found this blog through Pinterest when she was searching for ways to help her developmentally delayed child. She found my story of our journey with Sophie. It gave her the exact encouragement she needed, she said.

Her comments wrecked me all over again. I’m so thankful that God truly made all that struggle so beautiful. I’m so thankful to be used. I am blown away, ripped open, blessed and humbled. Torn up. Ripped to shreds.

In a very, very good way.

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Field of Dreams

Saturday was a day I’d been anticipating for a long time – my family’s first time at the Buddy Walk for the Miami Valley Down Syndrome Association.  We came out to walk and support our friends Paul, Jessica, Jay, and Baby Joy. Joy was born this past April with Down Syndrome, and when I found out Paul and Jess were going to form a Buddy Walk team, I knew immediately I should get involved!  With your help, I raised $599 for the people living in my area with Down Syndrome!  And our team, Team Peace, Love, & Joy raised over $3,000! Woooohoooo! We were also the #7 fundraising team for the whole walk! Not bad for a first-year effort, right!?

The Buddy Walk was downtown at our beautiful minor-league baseball stadium, the Dayton Dragons Fifth Third Field. It was a rainy morning so we couldn’t get out on the field, but fortunately it cleared up right before we were set to walk!  So we walked around the concourse and had a great time and a gorgeous day.  We LOVED hanging out with our team!  Here’s Bobby, Jonah and I with Joy Marie, the star of the show!

And here’s me with Joy and her awesome & beautiful mom, Jess:

Here are some more fun pics of our day at the Buddy Walk:

I cannot tell you how proud I was to be a part of Team Peace, Love, & Joy to support this sweet family and all the wonderful families of the Miami Valley Down Syndrome Association! I also wanted to give big props to my friend Jen, whose team in honor of her 5-year-old daughter Emmaline and her niece Kayla, was the #4 top fundraising team! I’ve known Jen and her hubby since high school and Emmaline and Sophie are the same age and used to go to the same speech therapist. I’ve loved watching Emmy grow and learn and just be generally awesome. She has a really awesome mom, dad, big brother and sister, too!

My favorite part about the Buddy Walk was just seeing all the happy, excited families there.  Everyone was so joyful and proud and the mood was just celebratory and fun!  No one was there crying about their lot in life parenting a child with a disability.  Everyone was thrilled to be celebrating their families, raising awareness, and raising money to help get their kiddos the funds they need to reach their full potential.  It was, as I like to say, TOTES awesome.  Totes!  I was super-proud to have my family involved and I can’t wait til next year!

Thanks so much to everyone who supported my fundraising efforts, from my $5 Friends to my $100 Friends, you all made this possible, and I really cannot thank you enough for helping to make a difference in the lives of some pretty rockin’ people right here in my hometown.

THANK YOU!!!

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